About HS (Hidradenitis Suppurativa)

HS (Hidradenitis Suppurativa) is an immune disease that causes red lumps and boils, primarily in the folds of your skin. Usually that means your armpits, groin, stomach, and/or buttocks. It is also known as ‘acne inversa’ or Verneuil's disease. HS is not categorized as an autoimmune disease, but it is caused by over-activity of the immune system, which causes inflammation. Inflammation in the skin causes the mix of redness, swelling, itching, pain, sores, and drainage. People with HS also have systemic inflammation that can cause joint pain or fatigue.1

Fast Facts1

  • Women are 3 times more likely to get HS than men.
  • People who are Black or biracial are more likely to have HS than Caucasian people.
  • HS can run in families. About 30% of people with HS have a family member who also has the disease
  • HS often starts after puberty – when you’re a teen or in your early 20s – but it can also develop later in life in your 40s or 50s.

Symptoms1

While the symptoms of HS can change over time and may present differently for each person, symptoms generally include painful nodules, abscesses that drain pus and last for weeks or months, and increased scarring and discoloration.

Treatments1

Although there is currently no cure for HS, there are a variety of available treatments. Your health care provider will recommend treatments based on the severity of your HS, your reaction to prior treatment(s), and other health conditions. Additionally, there are a wide array of available clinical research studies available for interested participants who may meet study eligibility criteria.

1 HS Foundation. (n.d.). https://www.hs-foundation.org/